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The opening of this shiur, in Rabbi David Ashear’s own words — taken from the captions, so names and Hebrew terms may be approximate.
2019 in July of 2019 his daughter was diagnosed with a terrible disease called SMA she wasn't able to walk the doctor said it could be fatal aleno was very very bad news to them and he said but there's a light there's some good news too what's the good news he said until today there was no known cure for this disease but the FDA a couple couple of weeks ago just approved the drug called weeks ago just approved the drug called zolgensma that could cure this disease it's one injection excuse me for an hour in the hospital and your daughter could be cured unbelievable how do I get it he says the one problem is it is the most expensive drug on the market to get it cost $2.2 million $2.2 million for a medication a one-time dosage so he went through the insurance dosage so he went through the insurance company and ordered the medication the insurance company denied it he tried again they denied it again they said this is not covered I'm sorry he hired a lawyer to fight them he said we were fighting the clock because the FDA only approved this drug until the age of two and my daughter's second birthday was in 2 weeks they were fighting in court and with one week left before her birthday the verdict was reached they lost they
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- 0:312019 in July of 2019 his daughter was diagnosed with a terrible disease called SMA she…
- 1:04weeks ago just approved the drug called zolgensma that could cure this disease it's one injection…
- 1:34dosage so he went through the insurance company and ordered the medication the insurance company denied…
- 2:05the verdict was reached they lost they were not getting the drug from the insurance company…
- 3:05amazingly over 20,000 people donated and they had the $2.2 million with two days to go…
- 3:36the medication right now I'll put up the money he pays the 2.2 million up front…
- 4:06great the young Rabbi said when I got the money a few days later I went…
- 5:06unbelievable after I had some time to think I came to a striking Revelation he says…
- 5:36at 10:00 we're going to the club he said okay and he said wait tonight's T…
- 6:06go he said it was very very hard for me but I fought it off and…
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More from Rabbi David Ashear
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